I have decided that a huge training deficiency is a lack of understanding, amongst the decision makers, about how all these special needs can be met.
When Daisy left, I typed up three very detailed documents for CPS to use. I even cc'd a copy of each one to Kori. The first was a list that included every single specialist, doctor, and therapist that Daisy was seeing. I had names, addresses, phone numbers and emails for everyone. The second document was a general medical history. I knew Kori wouldn't know off the top of her head when different procedures had happened so I listed everything out with dates. She needs to be able to tell future doctors when Daisy had her last EEG, for example. The third document was a detailed list of all of Daisy's future medical needs. I spelled out all her upcoming medical appointments and several things that CPS needed to follow up on. One paragraph of that paper said this:
Daisy needs to be receiving vision impairment services through the public school system. As of now, Daisy has had the initial appointment and the full vision test. She does qualify for both VI services and Mobility/Orientation services. The next step in this process is for (my school district) to schedule the ARD meeting. The paperwork is going to have to be transferred to (the school district Kori resides in). ECI (Early Childhood Intervention) can help with this but someone is going to have to make sure the ball gets rolling. Daisy desperately needs the vision therapy. The longer she goes without, the more her vision can be stunted.I just got a message from Martin, Daisy's (old) CPS worker. He said that the new supervisor in Daisy's case needed clarification on that above statement as Daisy is not of school age yet.
I'm sorry - but CPS staff members should have a basic idea of how special education works! I can promise you that Daisy is not the only child under 3 that is in the public school special education system. I have run in to it time and time again. The decision makers in these cases have no idea how to go about getting services for the kids. And since many, many foster parents aren't trained on this either, I'm betting way too many foster kids just simply don't receive services. (I received NO training on special services prior - or after - becoming a foster parent. Everything I know I've learned through direct personal experience.)
That just kills me!
Because really - what needs to be explained in that paragraph up there? I said exactly where Daisy is at in the process and what needs to happen next. They can either call ECI or the appropriate school district. But no...they needed to contact me to have me explain that children under school age, even infants, can be a part of the special education process. What did they think I meant? Did they think I just made all that up?!
My biggest fear is that all of Daisy's early interventions will just stop. I know that I had to learn the hard way about absolutely everything! My agency is unaware of the processes to receive therapies. And now it's perfectly clear that CPS is as well. And since I feel that Kori truly doesn't believe her daughter needs all these therapies, Kori won't do the hard work of staying on top of things to make sure they happen. What motivation is she going to have to keep calling people if she doesn't think Daisy needs them anyway?!
Sometimes it's really hard to let go. I've got no control over any of this now. In fact, Martin just told me that the State is NOT the medical consentor in this case. They said they'd do that in court, but the paperwork says otherwise. Kori is free to decide, or not decide, anything at this point in time. I was very disappointed to hear that. No one is going to accompany Kori to any of the medical appointments.
I fear for Daisy's future.